A Child is Waiting

I am a HUGE Judy Garland fan and last year around this time I came across the film A Child is Waiting (1963).  Judy Garland is a music teacher just starting a job at a mental hospital and trying to help one of the clients at the hospital.  Burt Lancaster is also in the film as the director of the hospital  You can read more about it on Wiki.

This film really surprised me as to the thoughts of people with disabilities, that some of the cast were children with disabilities and the way children with disabilities were treated in education.  You can watch this film on Netflix 

There is a scene mid way thru or so where there was some sort of board meeting or funding meeting and the director of the hospital was explaining the importance of funding the hospital and the education of the children there.  The funders or whoever they were kept implying they would rather fund children who were able to ‘make a difference’ in the world so to speak… have jobs, lead ‘normal’ lives.  This seen was amazing to me and spoke loud and clear that today we are still lacking in the funding for education of children with developmental disabilities and the words in that scene still ring true in my opinion.  I was hoping I could show you that clip but the film has been removed from youtube.  I definitely recommend taking the time to watch this video.  It will make you go hmmm.

Here is the trailer


Accessible Grieving

As I have been reading and watching the after effects of Whitney Houston’s death I can’t help but be sadden and just ashamed of the way people talk about a human being.  It isn’t just her death but so many who die from addiction or mental illness.

I can’t say I am a Whitney Houston fan… I knew very little about her.  I had no idea she had a daughter or that she had an album in the last decade… but again I don’t listen to the radio, read magazines or watch much of any TV… it doesn’t mean that I did not grieve for her death.  I have to say I am probably a little more sensitive to death and I grieve for anyone who has died… but mainly grieving for the people who lost someone they loved.

Whitney’s songs do bring up memories for me.  Her music came about while I was growing up… going to school dances, having crushes and a time where it felt like a song was written just for me.  I remember watching The Bodyguard and thought how strange it was for a white man and black woman to fall in love… how eye opening that was for me.  I was a freshman in high school maybe.. and came from a small Nebraska town so that wasn’t something I ever saw.  So to me it is more grieving of the memories than the actual person.

The way society focuses in on the ‘bad’ about a person who dies from addiction or mental illness is very disheartening to me.  When I was 9 years old my grandmother killed herself… living in a small town of about 6000 people the word travels fast.  My parents sent me to school the day after she died and because she committed suicide I was not consoled or even a hug from my teachers or friends… instead my teacher laughed at what my grandmother did and told me she was stupid, my friends told me she was going to hell.  I felt I could not grieve but had to put on an armor to protect her memory and myself.  Unfortunately, there is no armor strong enough to withstand negative comments about someone you loved who left way too soon.   To me my grandma was a good person who went to church on Sunday and loved me… and I loved her… so it was confusing and life changing to me that people would see her as anything different.

So when I see and hear all of these negative comments about anyone who has died, I grieve… I grieve for people who I have known who died from something society doesn’t think is ‘right’, I grieve for my grandmother, I remember the wonderful things about people whose demons were overpowering.  I remember their strengths, what they meant to me or to someone they loved.  I realize my own demons and the power I can have to shrink those demons and those times where the demons overpowered me.

As my grandmother was a great woman I believe Whitney was a great woman.  I think of her loved ones… I think of all who have lost someone from addiction or mental illness.  I hope for peace for myself and all who have been thru something similar.

I could not imagine what Whitney’s loved ones are feeling at this moment when every where you look is something negative about her.  I am thankful I only had to deal with a small town of people and it wasn’t plastered on the front page of every magazine and paper and all over the internet.. but to me that small town was all I knew so I guess it was the same for me… except I could move away and escape and it is everywhere for them… but does it really matter?  Why would anyone say something negative about someone who died?  where is the respect for human life?  all human life?  Everyone means something to someone so who are we to say anything different?  Who are we to judge another?… no one knows all the facts… or in someone else’s head… so how can we judge?

I guess a little empathy and compassion goes a long way.  Addiction and mental illness are not something to judge but something to help and to send a little compassion.  Everyone has demons… everyone has their issues… everyone deserves a bit of compassion and respect.

Thank you Whitney for paving the way for Women who want to be or who are artists.  You made a difference and you are FABULOUS!


This is Eating Disorder Awareness??

This post is a little hard for me.  I have been thinking about this for the last few days and I am hurt and furious in so many ways.

Let’s back track a little…I have had an Eating Disorder for over 20 years.  I am in a great place in my recovery and I have spoken about my recovery journey for the last 10 years.  I have spoken at my share of Eating Disorder Awareness Events but the last two years I have not been as involved in Eating Disorder Awareness.  I have to say I miss it even though I tell people I have retired from that part of my life… but I guess you never retire… you always fight so that someone else gets the help they need or someone else might not have to fight so hard for what they need.

A couple days ago I fell upon the Renfrew Center (an Eating Disorder Treatment Center all over the East Coast of the US) Facebook page.  I have actually done a lot of advocacy and was an alumni consultant for the Renfrew Center in Florida for many years.  Anywhos…they have a tab called Barefaced and Beautiful.  So of course I was curious as to what exactly that was.

It is a campaign created by the Renfrew Center for Eating Disorder Awareness. Barefaced and Beautiful… Without and Within.  For their Eating Disorder Awareness on Facebook they are asking for women to go without makeup and change their profile picture to themselves without makeup to start up a conversation about eating disorders, body image and true inner beauty.

I am sure some of you are thinking… well this sounds great.

This would be great if their product was cosmetics and all of their consumers wore makeup.

But this is an Eating Disorder Treatment Facility who educates on Eating Disorders.  Educating people that Eating Disorders are not about the food or about ‘looking’ a certain way but they are an inner struggle felt by both men and women.

I have personally had a struggle with this basic understanding from doctors, friends, family and acquaintances  that my eating disorder was not about me wanting to be a super model but about a self hate so deep that I was punishing myself every minute of the day.  I was worthless and did not deserve food.  I wanted to disappear because I was not worth taking up space.

This campaign coming from a place where I went to heal is appalling to me.  This campaign is saying very loudly with no words at all:

1. People have eating disorders by choice and only to ‘look better’
2. Only women have eating disorders

I only wear makeup for extremely special events… so this basic awareness tactic is unaccessible to me.  With this campaign I feel that my struggle isn’t as important as someone who wears makeup.

With my advocacy I focused in on the soul and inner thoughts and stayed away from all numbers and physical attributes so that people can start to realize that Eating Disorders are emotions and that the food and body image are symptoms.  I feel with this campaign, Renfrew is going the complete opposite way and erasing all that I and so many others have worked hard to establish.

I also have a concern about this campaign for people in the midst of the struggle.  Social media is not always a safe, friendly space.  When you are in a treatment facility the concept of going without makeup can make a strong impact when you are with a strong support group but in social media this is not always the truth.  People are constantly making fun of the way people look and if you are someone who wears makeup regularly and all of sudden changes, this will bring a lot of attention your way… but is everyone ready for that much attention?   The attention will not be on Eating Disorder Awareness it will be on someone’s physical appearance.  Comments will be made on physical appearance which can be triggering to someone within the struggle of an Eating Disorder.  Someone might not realize this and follow this campaign because they trust the advice of the Renfrew Center… but the Renfrew Center is really feeding them to the hells of social media.

For me this campaign is using women’s bodies as advertisement.  This is also something my colleagues and I talk about when we present on Eating Disorder Awareness…. and here is Renfrew using women’s physical appearance to advertise for themselves.  Again, if your product deals with the face or body then this is something that could work… for instance the Dove Campaign… but the Renfrew Center is not Dove.

The amount of people who are unable to be a part of this campaign is also something that just does not make sense to me.  What about women and men who do not wear makeup… mothers, fathers, sisters, brothers, daughters, sons, etc. who want to show support for someone they love who struggles with an eating disorder… who may not wear makeup.  All of these people are excluded from this campaign.

As I have been sitting here trying to figure this all out and really not feeling to fabulous about myself I decided to do my own Eating Disorder Awareness.

I personally do not read magazines, watch TV or listen to the Radio because of advertisements… I have tried going back every once in awhile forgetting that the standard of our body from the media is getting smaller and smaller.  I sometimes watch shows online but I am gradually pulling away from that also.  I love the older shows where people were all shapes and sizes… the perfect body wasn’t bones.  They still make their cracks about weight but we are all guilty of that… but seeing people with realistic bodies is really refreshing and now I have created an environment where I am not use to seeing these images of ‘what society thinks I should look like’… but lately I have noticed that what the media has been telling us for years about hating our body is gradually seeping into my Facebook home page from my friends.  People talking about how they hate their bodies, loosing a lot of weight in short periods of time, pictures and comments about strangers bodies, judgements about food… all things that when I was in recovery were never talked about.  Things I have taken out of my environment.

So my Eating Disorder Awareness is We Are Fabulous in February… (and all other days of the year).  I am asking my friends and Facebook/Twitter users to post 1 thing that is fabulous about themselves once a day in the month of February.  That is 29 Fabulous things about each person who participates.  I am hoping they will share with their friends and be able to help each other out on what is Fabulous about themselves.  My hope with this is that the Facebook home page starts to become more positive about our bodies and ourselves instead of a place of negativity about ourselves and other people.  The bonus of this is that for the rest of the year when you have one of those days where you don’t feel so fabulous… you can look back in the month of February or your friends can remind you of 29 Fabulous things about yourself.  Now how cool is that.

 

 


Website Options

I was looking thru Vertical Response which is a marketing service trying to figure out all the options and such for a client I am working with.  I fell upon this ‘Accessible Opt-In Form’ on the Vertical Response Forum.  Mind you this is from 2008 but it brings up a lot of questions for me about web accessibility.

Here is the question from the forum:

The current opt-in form for lists opens a pop-up window where the user has no control of the window once displayed. This is inaccessible because it does not alert the user that a window is opened, and the window contains no information on what the window is for visually impaired.

Is there a way that vertical response opt-in forms may be customized to be made accessible? Can i create my own form and use a URL from vertical response to submit to particular list or can you guys address this issue?

Why would a website create options that are not accessible?  What this man was talking about was the basic opt-in form… but to be accessible he had to edit the html code.

The first line to the answer on the forum:

I’m not sure if I fully understand your question.

And then goes into how to fix this question he does not understand.

When I posted on the WordPress forum about an issue one of my readers had with commenting and asked how WordPress was accessible I received a nice quick response which was fabulous but later in our conversation as I was asking more questions about accessibility on the forum he states:

Again, accessibility depends on specifically which type. Blind, color blind, voice command, etc. We do our best to keep everything accessible to the widest audience, and appreciate user feedback to improve things.

I do appreciate him being open about feedback but I was sure to correct him in terms of categorizing accessibility.

If something is only ‘accessible’ to certain people/abilities/disabilities then is it really accessible?

If web designers and web help do not understand the full term of accessibility is that creating a larger accessibility issue?

Are there courses/training in place at these companies to inform their employees of what accessibility is and entails?

It seems to me we are right back at having to ask for accessibility.

 


Automated Phone Services

Am I the only one who gets frustrated with those automated phone services?

The other day I had to put money on my pay as you go phone… something that should take just a couple minutes took 30 minutes to do.  Of course there is no actual human to speak to and once you get stuck in the loop you can’t get out.  I hung up and tried from the beginning and still couldn’t get to where I wanted to be.  At least with this service I can somewhat understand the options which is my problem for most of these automated services.  Maybe it is just me but after 3 or 4 different options I forget what I was even calling to do… and of course the list never states exactly what you are looking for, instead, you have to figure out exactly what category it would be in… for me it always seems like what I am calling for can fit into multiple categories and it is horrible if you pick the wrong category and end up with more menus.

How do you get out of this cycle?

I personally have had some success in yelling really loud in the phone… then I finally get a live human person but some services must not have any live human people available.  So then what are you suppose to do?

What is worse are those automated services where you have to speak and can’t type in your answers… seriously? do any of those really work?  I think I speak clearly and I can never get them to recognize what I am saying… what happens to people who have speech issues?

Should it be mandatory for all automated services to have a live human operator available by pushing ‘0’ at any time during your call?

What kinds of accessibility has been lost since technology has taken out live human workers?


SOPA/PIPA?

A Screenshot of Wikipedia during the 'Blackout' January 18, 2012

The US with a censored internet?

So when I see SOPA and PIPA in articles and such I can’t help but think of the Simpsons movie… we will all be yelling at SOPA and PIPA instead of yelling EPA… but anywhos… I was curious today if Wikipedia went thru with the blackout protest against SOPA and PIPA.  This is a screen shot of what their blackout looks like.  Quite a good resource because if you put in your zip code you can then email your local representatives.  Part of me kind of chuckled when I saw this because I thought about that college student who waited until the last minute to do their paper… they go to their main resource of Wikipedia and it is not available… there are probably college kids all over the country freaking out at this moment.  But on a serious note.

The internet today:

* Not all websites are accessible

* Internet is not accessible to everyone financially

* Internet is needed by students

*Internet is needed by job hunters

* Internet is the main source of information

* Internet is becoming the main source of communication

What would happen if the internet was censored?

What other accessibility issues would arise from a censored internet?

I personally think time needs to be spent on making the internet as it is today accessible.  Creating laws and help in creating accessible websites.  Having free internet so it can be accessed by all.  Children are falling behind in school because their families can not afford internet at home.  People who are looking for jobs need to have access to the internet.  People with all types of abilities are unable to access websites and information because there are no regulations on accessibility.  I guess I am not surprised by SOPA and PIPA helping out the 1%… if there is 99% of us who think differently then we need to use our voices… power in numbers!  Stand up for what we need and believe in.

I believe in:

Freedom of information! Internet for everyone!  🙂


Accessible Advertising?

Are the way products advertised create an accessibility issue?

I started thinking about this over the weekend.  I personally don’t have a TV or Radio because I am tired of commercials telling me I am not good enough… I should be thinner, richer and more beautiful.  Lately I have been listening to the radio in the car out of curiosity of what is the latest pop song craze.  This weekend I happen to hear an advertisement for the ‘Man’s Show’ that is coming to my area.  I was appalled at what it was telling me.  It stated that women have had their shows and now it is time for a man’s show…  Motorcycles, cars, video games, beer and sports people.  I couldn’t figure out which of these things are only for men… I ride a Harley Davidson FLHT, drink beer, love college football and have been addicted to my share of video games.  After hearing this commercial more than once (I wanted to be sure I wasn’t hearing it wrong) I wrote an email to the station:

I think advertising for the Man’s Show that is coming to our area is inappropriate.  I’m honestly surprised a show like that is even welcome in this area.

1.  It is advertising Gender rules… all men like motorcycles, beer, video games and cars?…. women don’t?
2.  It feels very homophobic because of advertising these above gender rules
3.  There is no women’s show but the advertisement makes it sound like there is.
4.  It is insulting to women because it makes it sound as if women make men do ‘feminine’ things and that all women only like so called ‘feminine’ things.
5.  Just a FYI: decorating, craft and home shows are not ‘women’ shows… in case that is the assumption with this advertisement.
6.  it is creating a line between the sexes that is not necessary.  We are in the 21st century and there are many people (men and women) who cross these ‘gender lines’.

It is time we take a stand on advertisements.  No one should be singled out, left behind or treated differently.  It starts with stations like you who choose not to use advertisements that suggest segregation. (color, gender, size, sexual orientation, religion, etc)  Make them sell the product not the people who use the product.

This afternoon I received an email response:

thank you for taking the time to write and listen. Greatly appreciated. I have also copied our Program Director on your comments.

Tonight I heard an advertisement for the Man’s Show and it just stated the facts… when, where and how to participate…. can’t help but think maybe I had something to do with that?

Change starts by letting people know what you think.  We all should be writing letters to our local stations requesting advertisements of the products instead of advertising the people who use the products.


Tip of the Iceberg

I was just thinking about all of the different aspects of accessibility and how far this concept of accessibility awareness reaches.

Right now I am looking into basic Accessibility Awareness.  Focusing in on thinking about accessibility which I hope will create discussion on What is Accessibility.  This is just the tip of the iceberg…

Other topics to look into include:

* Accessibility within Society

* Accessibility in the Virtual World

* Accessibility for the Consumer

* Accessibility for the Employee

*Accessibility for the Employer

* Accessibility of Basic Needs (food, water, shelter)

* Accessibility to Health Care

* Accessibility Laws and Procedures

* Accessibility Advocacy

So many thoughts at this moment… I am sure I will add to this list as I go along…but I think it is best to take it one step at a time. 🙂


What is Accessibility?

I have been trying to figure out this so called ‘accessibility’.  I can not claim on what accessibility looks like in your country but I can question accessibility in the places I have been and the laws within the United States.

I try to put myself in other’s shoes as much as I can and ask a lot of questions.  I want to know what is difficult for people of all abilities.  I am learning about accessibility awareness more and more which makes me believe this is an important topic that needs to be addressed in a global sense.  We are not cookie cutouts so the environment should not be that way.  The environment around us needs to be flexible and change because each and every one of us is unique.

What is ‘Accessibility’ to me?

Accessibility is creating an environment where everyone no matter their abilities can access all things as independent as possible.

Below are a few types of accessibilities I believe we need to be aware of.  With a short comment of how I think of these accessibilities.  (There are many more than what is on this list that I am figuring out as I become more aware)

Physical Accessibility:  The ability to move within a given environment freely.

Communication Accessibility: The ability to communicate in the environment with any form of communication.

Visual/Hearing Accessibility: The ability to freely discover an environment as independent as possible.

Mental/Emotional Accessibility: The acknowledgement that everyone processes differently and that the environment respects the time, process and opinion or way of doing things of the individual.

Financial Accessibility: To have a quality environment for people of all income levels.

I have started questioning places who claim to be accessible which will also be covered in this blog.

Please feel free to comment and share your stories of accessibility.

Thanks!


The most frustrating question.

As I have been trying to find ways to make environments more accessible or learning about accessibility in so called ‘accessible’ environments the most annoying question I am asked is:

Do you need accessibility?

I was working on an concert for people of all abilities and while setting up the space I requested there be a space for someone with a wheelchair.  I was then asked if I was expecting someone in a wheelchair.

At McDonalds I asked about the hearing/speech accessibility in the drive thru.  I was then asked ‘why, do you need it?’

Working with a web designer and asking them to make the website more ‘accessible’…  the web designer responds ‘I don’t think that is necessary’

Is a place accessible if they are not accessible all the time?

Is a place accessible if you have to ask for accessibility?

Is it possible to be too accessible?


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